Early MRI Tomorrow Because of New Symptoms

From James:

I am taking So Young to Johns Hopkins tomorrow for an unexpectedly early MRI. She was originally scheduled to get an MRI on October 23, but she has been having new symptoms that prompted the doctors to schedule an earlier appointment.

Over the past few weeks, So Young has started having balance issues. During a recent two-day period, she fell down three times. She seems increasingly unsteady on her feet. She requires a lot more assistance to get around without stumbling or tripping. She walks down any kind of incline at an increased pace, as if she can’t slow herself down. Other people have noticed the difference and pointed it out to us.

Also, So Young’s speech has changed. It’s hard to describe, but it is as if she has a different way of talking now, a different intonation of voice that sounds listless and less clear than previously.

She has had headaches more often in the morning, although not every morning. She also gets them when she bends over to pick something up. On Saturday morning, she had one of the morning headaches – not a major one, really – but she ended up nauseous and in bed all day. So Young is also tired more often these days.

I looked at a notebook I kept early on, before her radiation treatment, and I realized that her current symptoms resemble her earliest symptoms, except for her vision, which has improved since then.

By coincidence, we had follow-ups scheduled during the past week or so with her general practitioner and endocrinologist. The endocrinologist suggested that she see her neurologist as well. The three visits resulted in a resounding “I don’t know” regarding her symptoms. I called Johns Hopkins just to inform them, and they immediately rescheduled the MRI. They also prescribed dexamethasone in case So Young has edema (swelling) in her brain.

We are worried but hoping the MRI turns out fine. It feels like this even when she doesn’t have any new symptoms.

As a side note, we also saw an ophthalmologist last week. She determined that So Young’s vision is 20/100 in both eyes when it is corrected. It is 20/CF uncorrected, however, which means that she can’t see the eye chart at all when her vision isn’t corrected but can count fingers (“CF”) at about six feet. This means that So Young is officially not legal to drive, which we already knew. I just wanted an official confirmation, since her license has expired. You have to have 20/70 vision in at least one eye to drive in Virginia.

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3 Responses

  1. Thank you for the up date. Know that God loves So Young and you. He is closer that your heart beat, more vital than your breath. I don’t know why this is happening to you, but I do know that God is faithful and will help you through all that you face.

  2. My prayers are with you always. I said a prayer for you this morning even before finding out this news. Thanks for letting us know James. xoxo.

  3. Praying for her!

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