Tumor Board Results and Next Steps

From James:

The tumor board met this morning and were in “uniform agreement” that this is “tumor progression.” They do not recommend surgery to remove the tumor because of the location. They also do not recommend another biopsy. They are recommending chemotherapy. We would also have the option of participating in a clinical trial of some kind, possibly.

Our medical oncologist is Dr. Mathias Holdhoff, with whom we met early on when he decided to “hold off” on chemotherapy at that time. We will meet with him at 3 p.m. this Wednesday, September 26.

I asked if the tumor is still considered Grade 2, since it grew so quickly. The doctor said that higher grade tumors do tend to “light up” on the MRI, but that is not always the case. (If it had lit up on the MRI, they almost certainly would have performed another biopsy, she said. They don’t perform biopsies unless there is a change or for clinical trial qualification.) So it may or may not be Grade 3 or higher. Regardless, it is “not behaving well,” and we need to take immediate steps.

I want to thank everyone for your blog comments, emails, phone calls, and in-person words of encouragement. We especially appreciate all the prayers. You can click the “Prayer Requests/Answered Prayers” link to view a list of what to pray for now. Also, if you are interested, our amazing church family has organized a period of prayer and fasting for So Young. You can view the sign-up list here: http://goo.gl/MPjMM.


7 Responses

  1. I guess it’s not good news. I’m praying for you guys and think about you often. If there is anything I can do here (VT) please let me know. Take care of each other and those lovely girls.

  2. Praying for you. All of you. Specifically. Sending much love, knowing God is ever present, and that His presence will overpower anything unlike Him.

  3. Thinking of you all…I have asked a number of people to pray for you and/or send uplifting positive thoughts your way. Please let me know if I can do anything.

  4. Be encouraged James and So Young! Our Adult Bible Fellowship class is praying for you.

  5. I saw this on the WGTS website and thought I would share… There is power in prayer. Thank you all for praying and for caring so much.

    “Confess your sins to each other and pray for each other so that you may be healed. The earnest prayer of a righteous person has great power and produces wonderful results.” –James 5:16

  6. …praying for So Young and all who are involved in her medical treatment and in her support at home.

  7. Please know that the Mills Family has and will continue to keep you all in our prayers… “stay encouraged”

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